Happy rare disease day ! Cyclical vomiting syndrome here

Sorry for the selfie taken with a potato but trying to hi light just how much time I've spent there at the hospital ! I've had 6 visits over 3 years and only on my last visit December 2016 they finally figured out what's wrong with me! It took three years but I'm finally on the road to living with and managing this forever.

So let me start off by explaining I have cyclical vomiting syndrome. Pretty much means sometimes I can't stop throwing up. Now that might not sound bad to some people , but let me explain a bit. I had what I call episodes of CVS about 2-4 times a week when it first started showing its ugly head.

The episodes would happen when I was sleeping , I'm sleeping and all of a sudden I'm woken up with bile coming out of my mouth. Nasty right ? I have my own bucket next to the bed in case I can't make it to the bathroom , it's happened a few times where I've thrown up all over myself the dog and my boyfriend :( it's nasty. Anyways I'll be sleeping and be woken up with the insane need to throw up. And I can't stop. Once I make it to the bathroom I usually hop into a cold shower to keep throwing up. The cold helps me not focus on the pain so much. All that'll come up is bile , yellow , green , sometimes a kinda weird orange ? And it won't stop. A really bad episode will see me vomiting for 10-12 hours and by that time it's hospital time.

During the episodes I'll try to take medication , usually this guy. It's a dissolvable thing that reminds me of a listerine strips (doesn't taste as good) this is supposed to help me stop throwing up , it's prescribed to cancer patients going through chemo and can't keep anything down it should tell you how strong it is. This medication works about 50% of the time. I'll take one as soon as an episode starts and eventually it'll make me sleepy and not as nauseous , I'll try to go back to sleep and hopefully the next time I wake up I won't be throwing up.

But it's happened where I just get to dehydrated and can't stop throwing up and the pain is about a 15/10 and off to the hospital I go. Canadian hospitals have about a 3-4 hour wait time till the DR can come and asses you (every one I've been to at least) and they usually hook me up to an IV right away and withhold the pain medication till the DR eventually sees me (the pain turns me into a vomit monster , I can't remember but apparently I'm just horrid to be around)

My birthday was December 17th, I spent it in the hospital, happy 21st birthday ! At least I got an extra jello.

This was my big birthday feast. Extra jello!!!

I spent 5 days here this time and finally got my diagnosis !!! I had been dealing with this for three years and they had misdiagnosed me with 3 different things , H.Pylori which is an ulcer causing bug , cannabis hypermisis syndrome (which mirrors CVS a lot. I had to stop smoking pot for 2 years for them to finally realize I didn't have that and smoking pot wasn't making me throw up) , and peptic ulcer disease. I took a lot of medication within the three years to try and fix this supposed H.Pylori which ended up ruining my stomach a lot further.

Home from the hospital awaiting home care. That's where this nice nurse lady came to the house every day and changed my IV bag so I could at least spend Christmas at home. I finally got the official diagnosis of cyclical vomiting syndrome and met with a different specialist than the one I had been seeing (he wasn't that good he just blew off my symptoms from smoking pot even though I stopped for over a year at the point I had met him) and this specialist gave me proper medication to make the episodes way less frequent. I went from 2-4 times a week to I've had two in the last three months !! that's such a big thing to not throw up or fear eating anymore.

At least I had something to laugh at during excruciating pain. Guy smoking while hooked up to everything :p
Anyone suffering from CVS please message me